Wednesday, May 30, 2018

#AutINSAR 2018: What Do Autistic People Want from Autism Research?

Some of the onsite #AutINSAR participants, left to right: Jon Adams,
Sara LutermanDonna Bish, Andrew Colombo-Dougovito, Lily Levy,
Laura Crane, Mel Bovis, Carol GreenburgGeorgina Perez Liz,
and Shannon Rosa
Not pictured: Jelle van Dijk
Photo by Josie Blagrave

[Image description: Neurodiverse adults smiling and posing together]

The #AutINSAR chat was an in-person and online Twitter discussion about autism research priorities, with the conversation taking place directly between autistic and/or autism researchers on May 11, 2018, at #INSAR2018, the International Society for Autism Research conference in Rotterdam, Netherlands.

Many thanks to participants, and partners NOS Magazine, Autistic Self Advocacy Network, Autistic Women and Nonbinary Network, autchat, and We Are Like Your Child.

We discussed the following questions:
Q1: What should be the top three priorities for autism research? 
Q2: Which topics do #ActuallyAutistic people discuss that are missing from research conversations? 
Q3: What kind of technology research do you think would most improve #ActuallyAutistic people’s lives? 
Q4: What are examples of existing autism research that look promising for helping #actuallyautistic people? 
Q5: Which co-occurring conditions need more research attention, and why? 
Q6: What are some concerns of minority autistic community members that don’t get enough research attention? 
Q7: How can we better support #ActuallyAutistic autism researchers? 
Q8: Any topics we’ve missed that you’d like to discuss?

Who participated in #AutINSAR?





Q1: What should be the top three priorities for autism research?












Q2: Which topics do #ActuallyAutistic people discuss that are missing from research conversations?









Q3: What kind of technology research do you think would most improve #ActuallyAutistic people’s lives?








Q4: What are examples of existing autism research that look promising for helping #ActuallyAutistic people?





Q5: Which co-occurring conditions need more research attention, and why?











Q6: What are some concerns of minority autistic community members that don’t get enough research attention?




Q7: How can we better support #ActuallyAutistic autism researchers?




Q8: Any topics we’ve missed that you’d like to discuss?






Thanks so much for joining #AutINSAR