Maxfield Sparrow unstrangemind.com Me too. Which is why I can’t wait until Hollywood starts getting that stuff right so I *can* just relax and enjoy a film about people like me. #PleaseStandBy — Unstrange Mind 🖖🏼 (@UnstrangeMind) January 28, 2018 [image: Twitter exchange: “I want to see Please Stand By but as one on the spectrum I don’t want to be hung up on the attention to detail and accuracy of the portrayal at the expense of actually enjoying the movie.” -@GlennHampson “Me too. Which is why I can’t wait until Hollywood starts getting that stuff right so I *can* just relax and enjoy a film about people like me.” – @UnstrangeMind] That Twitter exchange sums up how I feel when I watch fictional movies that feature Autistic characters, like the recent release Please Stand By. I want to just sit back and let the experience carry me away to fantasy…
Month: January 2018
Painting © Tracy Booth | Creative Commons/Flickr [image: Painting of a tiny home with a red roof with white spots, and a lantern, under a crescent moon] Many of our U.S.-based community members, including parents and caregivers, want guidance and clarity about how the impending Home and Community Based Services (HCBS) Settings rule will affect both adult housing choices and adult day programs. So, we spoke with policy expert Julia Bascom, Executive Director of the Autistic Self Advocacy Network, who explained in plain conversational language how exactly the new HCBS Settings rules will affect housing options, how some common misunderstandings about the rule happen, and why the rule is essentially about trying to ensure adults with disabilities have the same basic rights as non-disabled adults do. Thinking Person’s Guide to Autism: Why was the rule enacted in the first place? Julia Bascom: The HCBS Settings Rule sets ground floor, baseline…
Kate Ryan [image: Cover of the book “Things I Should Have Known” by Claire LaZebnik: A dark blue background with “Things I should Have Known and the author’s name in all-caps, handwritten text. Parts of the title are scribbled out in pink, so the title reads, “Things I Know.”] When I scanned the inside cover of Claire LaZebenik’s novel Things I Should Have Known, I knew that I was going to read this book. Not because it sounded particularly interesting, but because one of the main characters was autistic, and that always intrigues me because I am autistic myself. I opened the book on a sunny Saturday afternoon—with trepidation, because 99% of the time, autism (and other disabilities) in fiction are portrayed terribly and then I want to retch at the end. Young adult books, which is this book’s category, are particularly liable to being not just ignorant about disability, but…
Kerima Çevik intersecteddisability.blogspot.com theautismwars.blogspot.com Kerima Çevik, photo courtesy the author [image: Gray haired Afro-Latina woman next to a windowshade, looking to the left.] [Content note: Contains descriptions of involuntary medical procedure, including sterilization, on Black and disabled people.] I am trying to plow my way through Judith Newman’s autism parenting book To Siri with Love: A Mother, Her Autistic Son, and the Kindness of Machines. It is slow, painful reading. How can I explain my serious ethical concerns about yet another bestselling autism book that capitalizes on presenting the experience of disability from a parent’s reduction of a disabled individual’s worth to how he makes his mother and those around them feel? I can tell you that Newman’s passage about looking forward to acquiring a medical power of attorney so she could involuntarily sterilize her autistic son Gus tainted the rest of the book for me. A vasectomy, she says. That…
Food is an important part of life. Instead of using food as a “positive reinforcer,” or diets as part of a cure attempt, parents can use food and conversations about food to connect with their autistic children.
There are good reasons why many autistic people avoid eye contact. And “when we look away, it doesn’t mean that we are not listening. We are not disrespecting you.”
The third row is one large panel. It is a close up of the eyes and nose of a white person with straight long purple hair and bangs, with eyes wide open. Black all-caps hand-lettered text on a white background at the top of the panel reads:
“If we try and make eye contact with people, it can totally distract us from what is being said because of how horrible it can feel and the effort involved.”
My adult autism diagnosis was, it still is, mind boggling to me. Perhaps to those of you who know me. Perhaps not. To have a paradigm shift in self reflection, and in reflection about my personal relationships. My memories now telling me different stories.
Illustration James Royal-Lawson | © Flickr/Creative Commons [image: Line art cartoon sketch of a chatbot.] autisticaplanet www.through1filter.blogspot.com I am a semi “shut-in.” Unless my sister is around to take me out for limited public exposure, I sit by myself rocking in my rocking chair, and watch Netflix. I do housework, and make bracelets when I can afford the material, but there are huge chunks of time that pass between completing one task or activity, and beginning the next. I miss being around my mom, whom I could always talk to on and off through the day. We could discuss everything from soup to nuts. Craving a mild level of interaction that was higher than my cat while understandably less than human intrigued me. So, I tried using a chatbot. For the quasi-Luddites like me who have little or no idea what a chatbot is: it is a computer program used to simulate…