Tuesday, March 4, 2014

NAS Professional Conference 14: Dr. Roy Richard Grinker

NAS Professional Conference 14: Dr. Roy Richard Grinker

NAS Professional Conference 14: Dr. Roy Richard Grinker

A compilation of live tweets from Dr. Grinker's presentation The Cultural Origins and Futures of Autism Spectrum Disorders, at the National Autistic Society's Professional Conference 2014 in Harrogate, UK. Any errors or omissions are my own. -SR
  1. Dr. Grinker's work centers on #autism, but from an anthropological perspective. Especially focusing on culture & perception. #NASprof14
  2. We know very little about autism internationally, yet there is a wave of #autism awareness around the world. -Roy Richard Grinker #NASprof14
  3. Traditional healers in South Africa find out about #autism the same way we all do - through the Internet. -Roy Richard Grinker #NASprof14
  4. People in other parts of the world are as likely to click on the #NAS as they are to click on a local #autism doctor. -Grinker #NASprof14
  5. Just because people study #autism in a culture doesn't mean people consider the role of that culture in perceiving #autism: #NASprof14
  6. #Autism societies around the world are common. But only a handful of countries actually count their #autistic people. -Grinker #NASprof14
  7. The first basic step in #autism research in a country: Is there autism, and what does it look like? -Grinker #NASprof14
  8. In cultures that value hierarchy/honorifics, like Korea, #autism may be detected when kids do not make that distinction. -Grinker #NASprof14
  9. What do we mean when we talk about culture? The meanings and values that we attribute to the world, how we conceive of a person. #NASprof14
  10. There is nothing in nature that suggests an #autistic person should be discriminated against. Culture makes that happen. -Grinker #NASprof14
  11. Clinicians cannot reliably distinguish between #autism & #Aspergers, one reason for an umbrella diagnosis re: DSM 5. -Grinker #NASprof14
  12. The diagnosis of Aspergers was of its time and helped destigmatise ASD at a time when it was stigmatised so served its purpose #nasprof14
  13. The question should not be "Why is #autism so common today." It should be "Why was autism so rare in the past?" -Grinker #NASprof14
  14. Talking about the god-awful Ransom Notes campaign, how (among other serious problems) not based on any kind of science. #autism #NASprof14
  15. The #antivaccine movement has piggybacked on the misconception of #autism causing loss and damage. Not surprising. -Grinker #NASprof14
  16. Psychiatric diagnoses as techno-phenomena: How the world sees someone affects the way they see themselves. -Grinker #NASprof14 #autism
  17. If something is cultural, it's not fixed. We made it. That means we can change it, e.g., negative attitudes towards #autism. #NASprof14
  18. #Autism wasn't rare in the past. It's just that other diagnoses were more common, e.g., childhood schizophrenia. -Grinker #NASprof14
  19. When we talk about #autism, we cannot see it in isolation. We have to see it integrated in a matrix of culture/history. -Grinker #NASprof14
  20. Race, class, poverty, gender, and geography all make a huge difference re: #autism diagnosis, and timing thereof. -Grinker #NASprof14
  21. Kanner studied 11 kids when he described #autism in 1943. Many fathers were psychiatrists. This is not a random sample. -Grinker #NASprof14
  22. Diagnosis drives services. So diagnosing #autistic people who had been overlooked in the past is a good thing. #autism -Grinker #NASprof14
  23. Sometimes, what appear to be scientific advances are often products of culture & history. -Grinker #NASprof14
  24. #nasprof14 @Autism #grinker the changes in attitudes in Korea came after film marathon - what appears as scientific advances is cultural
  25. You can only find something that you're looking for. #Autism awareness & understanding is a good thing, re: diagnosis. -Grinker #NASprof14
  26. It may look like there is an #autism epidemic in New Jersey -- but NJ gets more diagnoses because it provides good services. #NASprof14
  27. Grinker does not think we have an #autism epidemic. He thinks we are finally getting accurate diagnoses numbers. That's good. #NASprof14
  28. With destigmatization of #autism, people advocate - for themselves, for their students, for their kids, for employees. -Grinker #NASprof14
  29. Jim Sinclair: "We need & deserve families who can see us and value us for ourselves." -Grinker #NASprof14 #autism #autistic
  30. Re: window of plasticity & early intervention: Consider that Grinker's daughter made her greatest strides after age 18. #autism #NASprof14
  31. Functioning labels are not helpful. Some #autistic people can work while their friends w #aspergers cannot. Who is more "high functioning"?
  32. It's critical, not to mention respectful, to ask #autistic & #aspergers people how they want to be described. -Robyn Steward #NASprof14