It’s Becoming Very Real, That Sad World

Lydia Wayman autisticspeaks.wordpress.com I went to a Town Hall meeting today regarding the cuts to the Pennysylvania Department of Public Welfare budget, which means cuts to Medicaid. And so many people were saying that the results of cuts to Medicaid services for kids with autism (because probably 75% or more of the people there appeared to be parents of kids with autism, along with clinicians who work with people on the spectrum, and autistics themselves, like me) would result in the necessity of long-term institutionalization. In essence, sure, you’ll save the money now when we lose services because we can’t afford the copays, but it’s going to come back to bite you when we need to be institutionalized one day. I read my piece in front of all those people and made my point, which was basically the same as what I just described, too. They took my letter to…

psychsurvivors-8825746

Lives Worth Living: A New Film on the American Disability Rights Movement

Shannon Des Roches Rosa www.ThinkingAutismGuide.com Psychiatric survivors during a protest in 1976 Lives Worth Living is a new documentary on the history of the American Disability Rights movement, specifically the critical years from World War II to the signing of the Americans With Disabilities act (ADA)  in 1990. It is a necessary, unapologetic, inspiring, instructive, and far-too-short film that could easily beome a series —  so many important people interviewed, so many topics covered, so quickly. (For those who want to dig deeper, the Lives Worth Living site includes an interactive timeline of international Disability Rights, and a list of interviewees.) Viewers are given no opportunity to adopt the too-common patronizing perspective towards the disability rights activists in the film — there’s no time, these people have urgent stories to tell about themselves and their movement’s history. Some subjects reject pity outright, as when Ann Ford tells how it felt…

Words Matter: Thanks, Ricky Gervais, for the Pitch

Emily Willingham biologyfiles.fieldofscience.com daisymayfattypants.blogspot.com For background on this post, see the coverage and update at LoveThatMax.com. -The Editors When I was young, I lived a somewhat sheltered life. My parents never used racial or ethnic slurs around me or not around me, and even though I grew up in a small-ish, very southern town, the only slur I ever learned before middle school was the N-word, which I am myself to blame for having learned. At age five, rapt with the poetry of rhyme, I was working my way through the alphabet, rhyming with the word “Tigger.” When I reached N, my parents became rather dramatic and, let us say, instilled in me a permanent repulsion for the word. I was in Texas, so naturally, I did manage to hear that term again here and there. But it wasn’t until high school that I came across other slurs, mostly having…

Idle Thoughts on a Son’s Transition to Autistic Adulthood

Susan Senator www.susansenator.com “Well, that was school. I learned a lot.” This is what my husband Ned once imagined our son Nat might be thinking as he rode home from his very first day of school, back in 1993. The school was located in a junior college in the adjacent town; it was a mixed-disability class, as well as having typically developing children. Ned told me that he had no idea what Nat might make of school — it was such a big concept to understand for a three year old, especially one with “Expressive Language Disorder and Autistic-Like Symptoms.” (This was his very first diagnosis; I almost like its quaint and evasive character, in the way that I can look back on almost anything from that long ago with fondness: awww, such a little innocent naive diagnosis.) Even though we prepared him with a Nat Book (known to most…

img_5806-4526871

Hacking Autism’s App Hackathon (Part 2)

Last week Hewlett-Packard hosted an amazing event: a Hacking Autism app hackathon, which showcased innovative and philanthropic synergy at its most brilliant. The all-volunteer event brought together notable autism experts and app developers to focus on a common goal: developing free apps for tablet environments, based on crowd-sourced ideas from the autism community, to help people with autism communicate and contribute. TPGA editor Shannon Des Roches Rosa was invited to participate as a parent and blogger resource based on her autism-specific iPad advocacy work, and found the event so incredibly positive that she is covering it in two separate posts. Part one covered the opening talks by the hackathon’s advisors, and their specific takes regarding autism and technology. Part two is about experiencing the event itself. Innovative technology can make a difference for autistic people. My son Leo excels in ways we (and Apple) never anticipated via iPad/tablet apps, which…

img_8368-9861492

Hacking Autism’s App Hackathon (Part 1)

Last week Hewlett-Packard hosted an amazing event: a Hacking Autism app hackathon, which showcased innovative and philanthropic synergy at its most brilliant. The all-volunteer event brought together notable autism experts and app developers to focus on a common goal: developing free apps for tablet environments, based on crowd-sourced ideas from the autism community, to help people with autism communicate and contribute. TPGA editor Shannon Rosa was invited to participate as a parent and blogger resource based on her autism-specific iPad advocacy work, and found the event so incredibly positive that she’ll be covering it in two separate posts. Today covers the opening talks by the hackathon’s advisors, their specific takes regarding autism and technology. The apps developed at the App Hackathon will be posted at HackingAutism.org as they are finalized over the next few weeks. Those interested in hosting or getting involved with a hackathon should contact Random Hacks of…

stephenshoremusic1-5945850

Learning to Play a Musical Instrument is for People with Autism too!

Stephen M. Shore, Ed.D. www.autismasperger.net Preparation  “Can you help me draw a straight line down the middle of the page?” I ask my student upon our initial meeting. Done! “How about three more lines, going sideways?” Done! Soon we have eight empty squares on what was a blank notebook-sized piece of paper. “A!” responds my student when I ask for the first letter of the alphabet. I then ask him to write that letter in the first box before moving on to B through G. The 8th box is filled with the word “extra.” “Excellent!  Gee, could you finish writing out a line of ‘As’ on this specially prepared yellow stickie™?” Done! “Now let’s write up some ‘B’s…” And we continue until we reach the letter G. Now with a “bank” of letters I’ll have the child use a scissors to cut the bottom part of the stickie™ off before…

Communication: A Million Little Things

Lydia Wayman www.autisticspeaks.wordpress.com If I knew what to say, I’d tell you a million little things that I’ve acquired in my brain over the weeks and months — and lifetime. If I could, I’d tell you that I’m so over age appropriateness. You say Disney and American Girl isn’t age-appropriate for me? Well, excuse my language, but I say you can shove it. I would, if I could, ask you what is the point of encouraging age appropriate interests? Is it to make friends? I have many, even more than I can keep track of sometimes. Is it so that people will like me? Hate to break it to you, but people already do like me (not everyone, but, well, obviously, right?). Is it so that I can be normal? And to what end, I would ask? If I’m comfortable with it, you should be comfortable with it, and that’s…

Talking About Sex With Young Adults With Autism

Laura Shumaker www.laurashumaker.com The morning of May 22, 2006, I set my alarm for 4 a.m. I wanted to be the first one to wish Matthew a happy birthday. He was in a college program at Camphill Soltane near Philadelphia. Matthew answered the house telephone on the first ring. He knew I would call. “Matthew!” I said. “You’re 20! Can you believe it?” “Yes,” he responded flatly. “But Mom? I have something very important to ask you. I’ve been thinking about Amy. Can we go see her?” Matthew had met Amy three years before during his first year at Camphill. Like Matthew, Amy has autism. The staff at the school had told us that they liked each other a lot and we were thrilled; since Matthew’s diagnosis years ago, we grieved at the thought of him living a solitary life. By the time Matthew became interested in girls, he picked…

nup_144681_0939-2954170

Jean Winegardner’s Interview with Ryan Cartwright of Alphas

Jean Winegardner www.stimeyland.com Ryan Cartwright as Gary Bell of “Alphas” I am always interested to see how television shows use autistic characters. Thanks to a column I wrote for Autism Unexpected, I was able to conduct an email interview with Ryan Cartwright, the actor who plays autistic character Gary Bell on Syfy’s show “Alphas.” Ryan had some great answers to the questions I had about creating an autistic character for television. He was interested in seeing his full answers published, and I agreed. (Don’t forget to read my full story about the show as well: “He’s not autistic, but he plays one on TV.”) Check out what Ryan had to say, and be sure to let me know if you’ve watched “Alphas” and, if you have, what you think of it and its portrayal of autism. Jean: How did you approach playing an autistic character differently than the other roles…